A couple of weeks ago, I lost my brother. Over the last couple of decades, he had the kidney of a motorcyclist and then, if I remember correctly, a young boy's. Transplanted kidneys last 7-9 years. It's hard to get more than two. So, Ben had been living on dialysis for the last few years.
When living on dialysis, you know your clock is ticking. But, still, the machines are miraculous. External kidneys, pumping out blood, filtering it, and then pumping urine-free blood back in.
But when I imagine my brother hooking himself up to this machine every day, I wonder if he hated it, even though he owed the damned thing his life. I think I would. Strange. I never wondered about this when he was alive.
When people are alive, sometimes what is most "alive" about them are the things we fear; our resentments, or how we have wronged them — the guilt. Death has this effect of bringing their humanity blazing to the fore.
Suddenly, I found myself imagining Ben's inner world instead of brooding on our strained relationship. What was it like to do dialysis every day? Could he bear to be grateful for that cursed plastic kidney?
Then, I realized something. We all have this ambivalent relationship with our machines. We've used them for so long, the "organs" they replaced no longer function. At some invisible threshold, we no longer just benefit from shoes, screens, and pumps — we rely on them. We can no longer run free without them humming, always humming.
Our machines transport us through space and time instantaneously via wires or move our bodies through the air at 30,000 feet. Their humming fades into the background and we sometimes forget them altogether. But, sometimes we look around and ask, Why did we build this? It reminds me of Henry David Thoreau noticing that the trains and telegraph lines help us go faster, faster. But to what destination are we rushing?
We’re not just trying to replace our horses and kidneys, but, now, our brains.
Even as I write this, I'm making the first draft via AI voice transcription. Speaking to my headphones as I walk around my Los Angeles neighborhood. I sense it, silently humming, using algorithms (neural networks, actually) beyond my comprehension to sort the vibrations of my voice into the correct syntax of our shared language. Does that add up to a net good?
Ultimately, I think the question is and always was: do they facilitate our spirit or do they squander it?
For one, AI transcription allows me to draft this while not looking at an LCD screen. Instead, I'm looking at the radiant blue sky — the extreme contrast of brightness of the distant leaves and the shade under which I stand.
When John Milton wrote Paradise Lost, he was blind. His daughters transcribed his iambic pentameter verse, line by line, as he dictated it. Milky eyes open and staring into the void, begging the muse, as he did, to ignite his internal light and redeem the blackness of his sight.
Dostoyevsky also dictated some of his best work to scribes. It seems like a better way to draft, at least for some. I like it. Without AI, I wouldn't be able to do it at this point in my career. But, again, to what destination am I rushing?
Milton's scribes (thinking of them as human "computers") allowed him to squeeze more of his genius into the world. Ben's dialysis machines allowed him to squeeze out a few more years of life. For both, I am grateful. But we would never confuse John Milton for his scribes, and I would never confuse my brother for his dialysis machine.
Our machines are just better and better scribes. Never does a good-enough scribe transform into Milton. That’s an entirely different approach. My brother’s death made this point clear as the blue sky.
In this last days, he lived in the basement of his best friend Derek and his wife and kids in Portland. Their kindness toward them, as much as the dialysis, kept him alive for these years. Kindness that I don't know that I could've mustered.
I want to call Derek and thank him for being there as my brother's consciousness flickered out. But also I worry about what his kindness would say about me, as selfish as that sounds. Because I needed to make amends with my brother. One that I had planned to make the very month that he passed away, as fate would have it. I didn't get to.
Derek is going to fly my brother's ashes down to his hometown in Louisiana where me, my dad, and my sister will bury him in the family plot. I’ll say a few words. Maybe I'll make my amends there.
None of that would be possible without the machines we use to communicate and travel, of course. But what all this makes painfully obvious to me is that what is primary is humanity — courage, kindness, and connection. What machines do, ideally, is give us time to focus on each other.
We use machines to do the opposite — to distract and alienate ourselves from the very people we created the machines to protect and enjoy.
When I think of Ben, I can still sense his "presence." Something beyond his brain. Just as strange and incorporeal as it was when he was animated — what made this man my brother, my kin, someone I had known since before I could remember, what made him a "presence" to me is just as mysterious as what might make him a "presence" now. It’s just as mysterious as what makes John Milton “alive” in his work.
That "presence," whatever that is, is more than mechanistic. Ben's death reminded me of that. Death reminds us of what matters and hopefully reminds us to aim our machines at what matters.
If we allow the machines to avoid our fear of death, and therefore of truly being alive — doom scrolling, distraction, and lazy dependence — they make us worse than dead.
But, if we use the machines to enhance our connections – to squeeze out a few more drops of genius, kindness, or life — they make us more than alive.
I’m very sorry to read that you have lost your brother. I lost my father many years ago and felt a sudden awareness of his presence as well, and of his loving awareness of me.
In my shock and grief that strong palpable sensation was a balm that began to heal the wounds of a long, painful relationship in which love and dislike, longing and alienation were entangled.
Since his earthly death I have felt a gradual mutual reconciliation between us.
You articulate beautifully and with courage and clarity the conflicting feelings, emotions and thoughts swirling through your mind and heart.
You seem open to a nurturing the soul connection with your brother. It is a perfectly achievable goal, even during this period when you and your brother are on either side of earthly death. Don’t succumb to guilt or regret; they are Satan’s snares, their function is to subject you to futility.
Your brother can be your supporter and advocate now, he can and almost certainly wants to help you achieve the full promise of your exceptional talent and creative promise.
Just don’t close up—continue to open yourself to the insights flooding your soul in the aftermath of your brother’s death: “there are more things in heaven and earth, Horatio, than are dreamt of in your philosophy.”
Send you my sincere sympathy and best wishes.
I have someone I was very close to in my life that died before I could let go of my position and extend myself for reconciliation. It's a terrible thing to live with. On the other hand, the inability to resolve my mistake leaves it present in my attention as a living lesson that never fades, which in a strange way, I'm grateful for. Machines make everything convenient, and where there is no rub, forgetfulness of all kinds settle in. Remorse is an inherently wakeful force. God bless you and your brother.